The Long Road to Everything Looks Fine

The adventure began in the summer. Noah was at ESY, waving sweetly to the buses, when he decided to add a little drama and have what appeared to be a seizure right there on the sidewalk. Because nothing says “good morning” like a medical emergency.

I took him to the pediatrician immediately and then to a pediatric neurologist the very next day. He looked fine. Of course he did. Noah was referred for an EEG.

That EEG was a full production. Noah would not sit still. The “stickers” were apparently offensive. It took weeks to get the results, only to learn there were no real results because they could not gather enough information to read anything useful. Weeks of waiting for absolutely nothing. If you would like the extended version of that circus, see Doctor Dramas.

After all that, I sought a second opinion. Why? Because Noah cannot tell me if his head hurts, if he feels dizzy, or if he is achy. He struggles to identify those things. So when doctors ask, “Is he complaining of headaches?” I get to say, “I have no idea.” Mother of the year.

The second pediatric neurologist was kind and practical. He said it was my call. It had been about three months and Noah had not had any additional episodes. We could wait and see.

I politely declined. I do not know if Noah is hurting. I do not know if he feels dizzy. I do not know if he feels anything unusual. I would rather be safe than sorry. Schedule the sedated EEG.

Fast forward almost eight months from the original incident. Yes, eight. Noah’s dad took him in for the sedated EEG, only for Noah to wake up not sedated at all. Because of course he did.( Read the full blog post here.) Thankfully, the staff was wonderful. They worked with him, calmed him down, and somehow managed to get through the test. For that adventure, see The Prince and Teen Titans Go to an EEG.

This time, I had results in less than 24 hours. The first time took three weeks, multiple phone calls, and very little luck. This time, 24 hours. Miracles do happen.

The bottom line: there is no indication of epileptic episodes. We now have a baseline in case this ever happens again. Peace of mind, finally. And only eight months, two neurologists, and one unsedated “sedated” EEG later.

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