Miriam WiglesworthNoah gave his new CPAP mask a try. Now we need to figure out how to help him sleep with a machine that has buttons, tubing, and water within reach.
Miriam WiglesworthNoah is learning to wear a CPAP mask, one timed practice session and one Darth Vader conversation at a time. We hope better sleep will lead to happier, more rested days.
Miriam WiglesworthA random conversation in a doctor’s office led us to a diagnosis we never expected and one many DS parents may never think to ask about.
Miriam WiglesworthEight months, two neurologists, one failed EEG, and one not so sedated sedated EEG later, we finally have answers. This is the story of worry, waiting, and fighting for peace of mind when your child cannot tell you how he feels.
Robert HuddlestonWhat was supposed to be a simple EEG turned into a full production starring Prince Noah, three bags of chips, and the heroic intervention of Teen Titans Go. A classic Kennedy Krieger adventure with a royal twist.
Miriam WiglesworthBetween doctor visits, school schedules, and life in general, I realized I have a full time job I never applied for. Managing Noah’s care takes a village, a shared calendar, and a whole lot of color coding.
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